Rett Syndrome Research Trust is a health advocacy organization that provides research and development towards the creation of a cure to Rett Syndrome.
Financial Statistics
Total Assets
Total Revenue
Total Expenses Year Total Assets Total Revenue Total Expenses Filing 2024 $20,356,580 $9,307,309 $11,731,465 View 2023 $18,457,084 $8,523,815 $12,338,304 View 2022 $14,883,080 $7,097,993 $4,042,165 View 2021 $13,582,017 $8,124,811 $4,739,121 View 2020 $11,977,275 $14,024,428 $3,066,720 View
Prior year filings: 2019 , 2018 , 2016 , 2015 , 2014 , 2013 , 2012 , 2011
Revenue Detail
Expenses Detail Employee Compensation Highest Earning Employees Employee Title Total Compensation Monica Coenraads CHIEF EXECUTIVE OFFICER $220,000 Timothy J Freeman CHIEF DEVELOPMENT OFFICER $220,000 Jana Se Von Hehn CHIEF SCIENTIFIC OFFICER $220,000 Robert Deans CHIEF TECHNOLOGY OFFICER $215,000
Grant Activity Grants Received Grants Given
All-time grants received statistics from Candid dataset:
Total Grant Value: $15,373,938 Number of Grants: 1,129 Number of Funders: 339 Selection of highest value grants received from the last seven years:
Amount Year Funder Subject $1,100,000 2021 Tull Family Foundation RETT SYNDROME RESEARCH $750,000 2023 Tull Family Foundation RETT SYNDROME RESEARCH $400,000 2024 Tull Family Foundation RETT SYNDROME RESEARCH $280,000 2020 Tull Family Foundation RETT SYNDROME RESEARCH $267,090 2024 American Online Giving Foundation Inc GENERAL SUPPORT $266,150 2022 Fidelity Investments Charitable Gift Fund For grant recipient's exempt purposes $236,000 2022 National Philanthropic Trust HEALTH $210,000 2022 Tull Family Foundation RETT SYNDROME RESEARCH $201,585 2024 Donor Advised Charitable Giving, Inc. HEALTH $200,000 2020 Kt Foundation Research Grant $185,735 2023 Donor Advised Charitable Giving, Inc. HEALTH $181,130 2021 Fidelity Investments Charitable Gift Fund For grant recipient's exempt purposes $150,000 2020 The Randall Family Foundation General support $139,850 2021 National Philanthropic Trust HEALTH $137,813 2023 American Online Giving Foundation Inc GENERAL SUPPORT $128,500 2020 National Philanthropic Trust Health $110,000 2023 The Randall Family Foundation GENERAL SUPPORT $104,139 2025 American Online Giving Foundation Inc GENERAL SUPPORT $100,000 2021 The Randall Family Foundation GENERAL SUPPORT $97,200 2022 Donor Advised Charitable Giving, Inc. HEALTH $90,983 2022 American Online Giving Foundation Inc GENERAL SUPPORT $90,428 2021 American Online Giving Foundation Inc GENERAL SUPPORT $80,650 2020 Fidelity Investments Charitable Gift Fund For grant recipient's exempt purposes $73,120 2021 Donor Advised Charitable Giving, Inc. HEALTH $70,258 2022 The Blackbaud Giving Fund GENERAL SUPPORT
More + Less – All-time grants given statistics from Candid dataset:
Total Grant Value: $33,358,306 Number of Grants: 132 Number of Recipients: 57 Selection of highest value grants given from the last seven years:
Amount Year Funder Subject $3,734,738 2023 Massachusetts Institute of Technology RNA EDITING $2,343,091 2023 University of Massachusetts Medical School RETT RESEARCH $1,254,085 2023 Emory University – Center for Ethics RNA EDITING $1,095,451 2024 Multiple Netherlands Recipients $641,740 2021 University of Massachusetts Medical School RNA/DNA EDITING;READTHROUGH THERAPY; MECP2 DUPLICATION SYNDROME $612,334 2021 Massachusetts Institute of Technology – Cashi RNA EDITING $607,197 2022 University of Massachusetts Medical School RETT RESEARCH $533,759 2020 University of Massachusetts Medical School RNA/DNA EDITING;READTHROUGH THERAPY; MECP2 DUPLICATION SYNDROME $500,000 2023 California Institute of Technology RETT RESEARCH $403,502 2023 Multiple United Kingdom Recipients $390,506 2023 University of California, San Diego RNA EDITING $360,624 2022 University of California, San Diego RNA EDITING $356,166 2020 Massachusetts Institute of Technology RNA EDITING $306,168 2022 Massachusetts Institute of Technology RNA EDITING $283,945 2022 Emory University RETT RESEARCH $218,311 2021 University of Massachusetts Medical School RETT RESEARCH $193,149 2022 Columbia University RETT RESEARCH $192,169 2022 Baylor College of Medicine MECP2 CONSORTIUM $190,000 2022 Multiple North America Recipients $186,074 2020 Habitat for Humanity International Inc PROTEIN REPLACEMENT $174,200 2021 University of California, San Diego RNA EDITING $150,836 2021 Coriell Institute for Medical Research Inc BIO REPOSITORY $150,000 2020 Multiple United Kingdom Recipients TO DETERMINE MECP2 PROTEIN FUNCTION (MECP2 CONSORTIUM) $145,075 2021 Multiple United Kingdom Recipients GENE THERAPY CONSORTIUM $134,714 2021 Multiple United Kingdom Recipients
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