Disability Rights Education and Defense Fund

The Disability Rights Education and Defense Fund (DREDF) is an organization that supports left-of-center public policies focused on individuals with disabilities through education campaigns, policy advocacy, community organizing, litigation, and coalition building. 1

At-A-Glance

Issue Areas: Multi-Issue Advocacy
Website: dredf.org
Formation:

1979

Executive Director:

Susan Henderson

Location: Berkeley, CA View on map
Tax ID: 94-2620758
Most Recent Filing: 2024
Budget (2024): Assets: $4,803,570 Revenue: $3,320,772 Expenses: $3,700,151

Contents

    History

    DREDF was founded in 19792 by a group of adults with disabilities and the parents of children with disabilities. 3

    Shortly after forming, DREDF received a grant from the U.S. Department of Education’s Women’s Educational Equity Act Program for the purpose of documenting and investigating the experiences of females with disabilities, a previously understudied group. 4 DREDF published the resulting book, No More Stares, in 1982. Ann Cupolo Freeman, a disability rights activist who appeared in the 2020 documentary Crip Cramp, assisted in producing the book. The documentary was produced by Higher Ground Productions, a company owned by former President Barack Obama and former First Lady Michelle Obama. 4 5

    Activism

    DREDF receives funding from the U.S. Department of Education to run its Parent Training and Information Center. In this capacity, DREDF connects families of children with disabilities with community resources and helps disabled children to obtain a fulfilling education. 6

    DREDF also advocates for policy initiatives that benefit people with disabilities, using legal advocacy in an attempt to change laws it deems harmful to the disabled community. DREDF is a member of the left-of-center Leadership Conference on Civil and Human Rights, the largest left-progressive civil rights coalition in the United States. 7

    Finance

    DREDF reported more than $1.8 million in total revenue in 2017 and over $1.9 million in total expenses. 8 The year prior, the organization reported more than $1.6 million in revenue and over $1.7 million in expenses. 8

    In 2016, the U.S. Department of Education awarded DREDF a $500,000, five-year grant to provide information centers for the parents of children with disabilities. 9

    According to its 2021 990 form, the DREDF reported a revenue of $3,185,251, expenses at $2,603,870, and total assets of $3,931,995. 10

    Leadership

    Susan Henderson is the executive director of DREDF and has worked in the role since 1997. Henderson began a number of DREDF projects, including the Foster Youth Resources for Education project and the Disability and Media Alliance project. 11

    Claudia Center works as the organization’s legal director. Center previously worked at a number of left-of-center organizations, including her position as a senior staff attorney within the Disability Rights Program of the ACLU Foundation. Earlier in her career, Center worked for the Legal Aid Society, the predecessor of Legal Aid at Work, as the director of the disability rights program. After earning her law degree at the University of California—Berkeley, Center worked as a staff attorney at NARAL Pro-Choice America, a pro-abortion advocacy organization. 12

    H. Stephen Kaye, Ph.D is the president of DREDF and board chair for the organization. He is a professor at the at the University of California (UC), San Francisco and also serves as the director of activist group Community Living Policy Center. Prior to DREDF, he as the head of the Center for Personal Assistance Services and was the co-director of the University of California, San Francisco Disability Statistics Center. 13

    Financial Statistics

    Total Assets

    Total Revenue

    Total Expenses

    YearTotal AssetsTotal RevenueTotal ExpensesFiling
    2024 $4,803,570 $3,320,772 $3,700,151 View
    2023 $5,195,352 $3,259,198 $2,740,192 View
    2022 $3,931,995 $3,185,251 $2,603,870 View
    2021 $3,357,643 $4,285,506 $2,396,082 View
    2020 $1,709,219 $3,485,503 $2,423,089 View

    Prior year filings: 2019, 2018, 2016, 2015, 2014, 2013, 2012, 2011

    Revenue Detail

    Expenses Detail

    Employee Compensation

    • Number of Employees: 25

    Highest Earning Employees

    EmployeeTitleTotal Compensation
    Susan HendersonExecutive Dir.$142,842
    Nicole BohnExecutive Dir.$118,618

    Grant Activity

    All-time grants received statistics from Candid dataset:

    • Total Grant Value: $8,952,219
    • Number of Grants: 204
    • Number of Funders: 62

    Selection of highest value grants received from the last seven years:

    AmountYearFunderSubject
    $2,000,0002020 The Ford FoundationGeneral support to advocate for persons with disabilities around the world to build diverse movements, ensure inclusive development agendas, and achieve equal rights and opportunity
    $1,015,0002020 The Ford FoundationGeneral support to advance the civil and human rights of people with disabilities through advocacy, training, education and public policy and for core support for institutional strengthening
    $382,1502022 Fidelity Investments Charitable Gift FundFor grant recipient's exempt purposes
    $380,1752023 Fidelity Investments Charitable Gift FundFor grant recipient's exempt purposes
    $325,0502021 Fidelity Investments Charitable Gift FundFor grant recipient's exempt purposes
    $173,5932024 The US Charitable Gift TrustFOR RECIPIENT'S EXEMPT PURPOSE
    $151,5752020 Fidelity Investments Charitable Gift FundFor grant recipient's exempt purposes
    $103,8972021 The Ford FoundationCore support for the Disability Media Alliance Project, focusing on the landscaping of a Disabled Journalists Association
    $100,0002024 BOREALIS PHILANTHROPYTO SUPPORT THE WORK OF DISABILITY RIGHTS EDUCATION AND DEFENSE FUND
    $94,7002020 PUBLIC HEALTH INSTITUTETechnical Assistance
    $83,0812023 Brandeis UniversityRESEARCH
    $75,0002022 Solidarity Givinggeneral support, $75,000 per year for three years
    $75,0002022 Ability CentralResearch to Quantify and Characterize People Who use AAC to communicate to better understand and meet their needs.
    $75,0002021 Solidarity Givinggeneral support, $75,000 per year for three years
    $75,0002020 Solidarity GivingGeneral support
    $73,4512023 The Skadden FoundationPAYMENT FOR FELLOWS
    $68,2502023 California Access To Justice CommissionPROGRAM SUPPORT
    $56,2502024 California Access To Justice CommissionPROGRAM SUPPORT
    $51,4662021 Brandeis UniversityRESEARCH
    $50,9882020 Brandeis UniversityResearch
    $50,0002020 The Ford FoundationTo create a new cultural intermediary dedicated to systemic change and innovation in the entertainment, advertising and news media industries to advance disability in media
    $50,0002020 The Ford FoundationFor the Disability Rights Media project
    $38,1502024 Donor Advised Charitable Giving, Inc.PUBLIC, SOCIETAL BENEFIT
    $37,5332024 The Skadden FoundationPAYMENT FOR FELLOWS
    $35,9232022 The Skadden FoundationPAYMENT FOR FELLOWS

    All-time grants given statistics from Candid dataset:

    • Total Grant Value: $21,103
    • Number of Grants: 1
    • Number of Recipients: 1

    Selection of highest value grants given from the last seven years:

    AmountYearFunderSubject
    $21,1032022 Community PartnersProgram related

    References

    1. “Timeline.” Disability Rights Education & Defense Fund, April 6, 2020. https://dredf.org/about-us/timeline/.
    2. “About Us.” Disability Rights Education & Defense Fund, April 6, 2020. https://dredf.org/about-us/.
    3. “Family Advocacy.” Children and Family Advocacy. Accessed November 4, 2020. https://dredf.org/programs/family_advocacy.shtml.
    4. “No More Stares.” Disability Rights Education & Defense Fund, April 4, 2020. https://dredf.org/no-more-stares/.
    5. Alm, David. “The Obamas’ New Film ‘Crip Camp’ Tells A Story Of Civil Rights You May Have Never Heard Before.” Forbes. Forbes Magazine, March 26, 2020. https://www.forbes.com/sites/davidalm/2020/03/26/the-obamas-new-film-crip-camp-tells-a-story-of-civil-rights-you-may-have-never-heard-before/?sh=2076df8e7d30.
    6. “Special Education.” Disability Rights Education & Defense Fund, October 30, 2020. https://dredf.org/special-education/.
    7. “The Coalition.” The Leadership Conference on Civil and Human Rights, October 6, 2020. https://civilrights.org/about/the-coalition/.
    8. Disability Rights Education and Defense Fund, Return of Organization Exempt from Income Tax (Form 990), 2017, Part I Summary
    9. “U.S. Department of Education Announces $2.5 Million in Grants to Operate Centers for Parents of Children with Disabilities.” U.S. Department of Education, August 31, 2016. https://www.ed.gov/news/press-releases/us-department-education-announces-25-million-grants-operate-centers-parents-children-disabilities.
    10. Return of Organization Exempt from Income Tax (Form 990). Disability Rights Education and Defense Fund. 2021. Part I. https://projects.propublica.org/nonprofits/organizations/942620758/202301669349301265/full
    11. “Susan Henderson – Disability Rights Education and Defense Fund.” Disability Rights Education & Defense Fund, June 10, 2020. https://dredf.org/about-us/people/susan-henderson/.
    12. “Claudia Center – Disability Rights Education and Defense Fund.” Disability Rights Education & Defense Fund, April 7, 2020. https://dredf.org/about-us/people/claudia-center/.
    13. “H. Stephen Kaye, Ph.D.” Disability Rights Education and Defense Fund, Accessed February 27, 2024. https://dredf.org/about-us/people/h-stephen-kaye/